Monday 22nd April, 2024

#NoCureAlwaysHope

24/5/18 About 1 minute
Hello everyone,

In 2008 I was diagnosed with the incurable and rare heart and lung condition Pulmonary Hypertension. I am under the Royal Brompton Hospital and at the time I was a given a prognosis of only a few months, but I was determined that this condition known as PH wasn't going to stop me from fulfilling my life dreams.
It's not been an easy road, but once I was on the correct medication, one of my dreams was to go to University. I have achieved this twice, first with a Music degree and the second with a Master's Degree in Music Therapy. I have recently married and we bought our first house in Chelmsford last year.
As PH is so rare I have always raised as much awareness as possible for those living with the condition. I've spoken on radios, written articles for the newspapers and become a Volunteer Ambassador for the PHA UK charity.
I have just started out on a new online awareness campaign on YouTube. Every Wednesday at 13:00GMT I will be uploading a video about different aspects of PH. The reason I've done this campaign is because I want people to know that if they have this condition, they are not alone! It can be difficult and lonely fighting this condition every day, especially after diagnosis and I am there for them if they want someone to chat to. I will understand what they are going through.
I would love it if you could subscribe to my YouTube channel, PHighter Tess, as this means you can follow my videos each week. I also have a Facebook page, Tess and PH, and Twitter, @maritess_mt where you can like and follow me to watch my video links.
I hope you can join me in my new campaign. Thank you for supporting my PH journey!

Tess Jewson


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